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CYSTIC FIBROSIS CARRIER SCREENING EDUCATIONAL MATERIALS

Award Information

Agency:
Department of Health and Human Services
Branch:
N/A
Award ID:
16550
Program Year/Program:
1993 / SBIR
Agency Tracking Number:
16550
Solicitation Year:
N/A
Solicitation Topic Code:
N/A
Solicitation Number:
N/A
Small Business Information
Macro Systems, Inc.
8630 Fenton Street Silver Spring, MD 20910
View profile »
Woman-Owned: No
Minority-Owned: No
HUBZone-Owned: No
 
Phase 2
Fiscal Year: 1993
Title: CYSTIC FIBROSIS CARRIER SCREENING EDUCATIONAL MATERIALS
Agency: HHS
Contract: N/A
Award Amount: $500,000.00
 

Abstract:

THE EVENTUAL IMPLEMENTATION OF POPULATION-BASED CYSTIC FIBROSIS CARRIER SCREENING IS DEPENDENT ON DEVELOPMENT OF REQUIRED EDUCATIONAL MATERIALS. THE LONG-TERM OBJECTIVES ARE TO DEVELOP AN INTEGRATED PACKAGE OF PUBLIC AND PROFESSIONAL EDUCATION MATERIALS THAT WOULD MEET THE PRE-SCREENING NEEDS FOR EDUCATION AND INFORMED CONSENT OF THE PUBLIC, AND FOR THE PROFESSIONAL OFFERING THE TESTING. THE MATERIALS WOULD UTILIZE INNOVATIVE TECHNOLOGY SUCH AS INTERACTIVE COMPUTERS AND WOULD BE DEVELOPED FOR THE AVERAGE READER. SPECIFIC PHASE I AIMS ARE TO: 1) ASSESS PERTINENT CONTENT AND INNOVATIVE MODES OF DELIVERY; 2) DEVELOP A PRELIMINARY DESIGN FOR THE INTEGRATED PACKAGE OF MATERIALS; 3) COMPLETE A PROTOTYPE OF A PRE-SCREENING MATERIAL FOR USE WITH THE GENERAL PUBLIC; AND 4) PREPARE A FINAL DESIGN DOCUMENT FOR PHASE II. METHODS INCLUDE: 1) COMPREHENSIVE LITERATURE REVIEW; 2) EXPERT PANEL ON GENETIC SCREENING, GENETIC COUNSELING/EDUCATION, CYSTIC FIBROSIS, HEALTH EDUCATION, AND LEGAL/ETHICAL CONCERNS; 3) FOCUS GROUP OF POTENTIAL USERS ON CONSUMER CONCERNS; 4) USE OF A DESIGN TEAM TO DEFINE SCOPE OF PROJECT; 5) DEVELOPMENT OF A PROTOTYPE; 6) USE OF A FOCUS GROUP AND REVIEW PANEL OF EXPERTS TO PROVIDE PRELIMINARY TESTING FOR THE PROTOTYPE; AND 7) DEVELOPMENT OF DETAILED SPECIFICATIONS FOR DEVELOPMENT OF INTEGRATED PACKAGE OF EDUCATIONAL MATERIALS IN PHASE II.

Principal Investigator:

Magyari, Patricia A
Principal Investigator
3015885484

Business Contact:

1 r43 dk44794-01
Small Business Information at Submission:

Macro Systems, Inc.
8630 Fenton Street Silver Spring, MD 20910

EIN/Tax ID:
DUNS: N/A
Number of Employees: N/A
Woman-Owned: No
Minority-Owned: No
HUBZone-Owned: No