FASTT telehealth behavioral support service for caregivers of children with developmental delay or disability

Project Abstract
Over 7 million children in the U.S. receive support for a developmental delay or disability (DD). For caregivers
of these children, behavior issues that often accompany their childandapos;s condition create high levels of stress
leading to increased mental and physical health issues and impacts on caregiver-child interactions and family
functioning. Although evidence-based practices exist to help caregivers with their childandapos;s behavioral
development, access to these services is often limited by rigid delivery models requiring in-person visits that
can delay support and further increase the burden on families. These barriers are disproportionately higher for
families of color and for those in low resource situations: an effect that has been exacerbated by reductions in
services due to COVID-19. The overall objective of this project is to develop and implement a telehealth
delivery model of rapid-response, evidence-based behavioral support to be provided in conjunction with an
existing family navigation program (Undivided) serving parents of children with DD to create a commercially
marketable product that will reduce barriers to services in local communities across the country. Building on
Undividedandapos;s established systems and trusted relationships with a large community of families of children with
DD, this project will extend that support by partnering with a text and telephone support service for caregivers
of young children (FASTT). This Phase 1 application will enable a collaborative process to adapt evidence-
based behavioral support to the specific needs of families of children ages birth to 12 with DD and integrate
that support within the existing family navigation service. The rationale for the work is that providing effective,
personalized support through the widely accessible mediums of text and telephone will get caregivers the help
they need when and where they have time to access it and close in time to the behavioral issues they need
help with, thus reducing caregiver stress and increasing their sense of competence and positive interactions
with their child. Aim 1 determines the feasibility of delivering evidence-based behavioral support to caregivers
of children with disabilities using on-demand text messaging. Aim 2 gauges the acceptability of the text-based
support service to caregivers. Aim 3 assesses the extent to which text-based support reduces caregiver stress,
improves caregiver sense of competence, and builds more positive perceptions of their childandapos;s behavior and
their relationship with their child. The positive impacts of the project are twofold. First, the integration of the
Undivided support platform with FASTT behavioral support represents an innovative approach to addressing
the critical gap in early intervention services for caregivers of children with DD with significant immediate and
long-term benefits for those families. Second, creating a delivery model that enables family navigation services
to provide evidence-based telehealth behavioral support as part of their service portfolio will create marketable
value by increasing engagement with families and subsequently increasing potential subscription revenue.Project Narrative
For caregivers of children with developmental delay or disability, behavior issues and lack of access to
evidence-based behavioral support can create high levels of stress with impacts on mental and physical
health, caregiver-child interactions, and family functioning. The proposed project addresses that lack of access
by developing and implementing a telehealth delivery model of rapid-response, evidence-based behavioral
support through a collaboration between an established family navigation service and an innovative telehealth
support program. This work is the initial step that will enable the Undivided support platform to integrate
accessible, effective behavioral support into its service portfolio, increasing access for families of children with
DD and promoting sustainability and engagement while providing critical immediate and long term benefits for
families.