SBIR TOPIC 246- INTEGRATING PATIENT-REPORTED OUTCOMES IN HOSPICE AND PALLIATIVE C
The overall goal of this project is to develop a commercially viable software system (PROCareLinks) designed for the specific problems and challenges of providing optimal care to terminally ill patients, addressing the management of pain and other symptoms , with quality of life as an integrative metric. A core purpose for the system is communication with, and between patients and their families, professional care providers, administrators, and researchers. Based on HL7, CDISC, and caBIG models and standards , and an existing web application platform, the underlying technology will enable integration, interoperability, and ongoing adaptability to evolving knowledge and best practices. The software architecture will be web-based, starting with PC browser-based user interfaces in Phase I. In Phase II, other interface modalities can be assessed; a main option is internet-independent devices in the home, for example a wearable wireless device to simplify rating of pain. The key component functional areas (modules) include: patient reported assessment over time in different settings, tailored interface displays and automated reporting functions, protocol-based decision support with individual variation, and scheduling and resource management.
* information listed above is at the time of submission.